What’s in a Name? Part 4 – Is Keeping a Wrong Label OK?
By: Julie Beem
Getting a completely accurate diagnosis in today’s climate (where trauma-based disorders are underdiagnosed) is very difficult. So when I put on my “Mom” hat I will tell you that advocacy toward the most accurate diagnosis only takes you so far. Advocating for and pushing professionals to diagnose our children accurately with RAD, PTSD, Developmental Trauma (or the new diagnosis in the DSM: Disinhibited Social Engagement Disorder) can be exhausting, and maybe not that beneficial. If all my child had ever been diagnosed with was Developmental Trauma Disorder (the diagnosis I believe to be the most accurate), I would have been up a treatment creek without a proverbial paddle. Who in my city would have known how to treat her? What therapies and parenting strategies would have been recommended to us? And would the school have even bothered giving her an IEP for something they’ve never heard of?
My point is this: diagnoses are important for getting services and making decisions on treatment. If you recognize that your child’s school district, doctors or other service providers will provide what your child needs with a diagnosis that may not be 100% accurate, then maybe it’s not such a bad thing to let that one stand.